10 May 2014

Luke's Heart Surgery is Delayed

It's taken me nearly 24 hours to deal with the disappointment we were dealt yesterday, the day before we were set to leave for Boston, when we learned that Luke was battling a cold which would keep him from being a candidate for surgery this coming Tuesday.  Every last detail was ready for us to load up and take off this morning... but instead... we're still here.  I came home from Luke's pediatrician appointment so let down that I crawled into bed at 5 PM yesterday and didn't re-emerge until around 9:30 this morning when I realized that my exhaustion was probably a combination of riding a mental roller coaster full of continual ups and downs, burning the candle at both ends as I attempted to work from home last week while spending the evenings preparing for an extended stay away from home and finally because I too have come down with the same cold that appears to be taking it's toll on our wee little one.  After keeping him in isolation and a near full-out quarrantine for almost one month, it felt so defeating for him to fall ill about 16 hours before we'd leave home to begin our adventure in mending his heart. 

When will his surgery happen, you may be wondering?  Well, we're wondering that same information too...  Apparently his surgeon is currently scheduling into August and September (which sounds about right since we'd had his surgery scheduled since February for May).  We are holding out hope that they will be able to work him in much sooner however, like within the next couple of weeks, althought it won't likely be until sometime next week that we hear from cardiac scheduling with an update.  Until then we just wait and pray for Luke's quick healing from his current illness.

We had friends stop over with a care package for our trip just after we'd returned from the pediatrician yesterday and they reminded us that our plans are not the same as God's plans and we talked about keeping your faith, especially as you face the unknown. We also received a card yesterday in which another friend reminded us of Philippians 4:6-7 "Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God which surpasses all comprehension will guard your hearts and your minds in Christ Jesus".  It's through the peace that only Christ can bring us, that wait for news to reach us of when Luke will be rescheduled for his open heart surgery.  As we seek some fresh perspective and some distance from yesterday's events, Dustin and I are planning to take to the woods for a few hours this afternoon to hunt for the usually elusive morel mushroom.  I've never found one during any of my half hearted scouting attempts in prior years... maybe today will be my day!

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