The Developmental Medicine Center at Boston Children's Hospital Obstructive Sleep Apnea
- Some highlights of the webinar that seemed pertinent to our situation with Luke:
- Obstructive Sleep Apnea can become worse when under anestesia because already floppy muscles become more relaxed with medication. This will be important to share with medical team prior to open heart surgery supposing Luke is diagnosed with OSA.
- Thyroid Issues, specially the diagnosis of hyporthroidism is much more common in folks with DS. Something I was already aware of, but I I didn't know that often OSA can be a primary symptom of hypothroidism and it can be improved with treating the OSA. Previously I'd thought that the thyroid panel was the only way to get at a diagnosis. It's relevant to share that we just had a complete thyroid panel ran on Luke a few days ago and his Free T4 was 1.3, TSH was 6.030 and T3 was 180.
- Specific to DS and OSA... often times this combination results in behavorial, cognitive and developmenal impairment which in turn can create a negative impact in the future related to integration in mainstream schooling and social frameworks
Something that I'd like to look into more in the future if we get a diagnosis of OSA is the relationship between OSA and thyroid levels. I've heard that even when TSH is in normal range, T3 is high and the Free T4 is low, medication could help treat central apnea.
PS - I'm in love with all of these other Down syndrome focused webinars from Boston Children's Hospital! They are such an awesome resource for families like ours!!
Allen Crocker Speaker Series