We learned halfway through our pregnancy that our second son would not only have Down Syndrome, but that he would also have a congenital heart defect known as Complete Atrioventricular Canal Defect that will eventually require Open Heart Surgery. This is our journey...
03 February 2014
02 February 2014
Looking Forward to Spring
Even though the groundhog saw his shadow this morning.... we're still looking forward to spring. And nothing says spring better than getting your seed corn in the ground!
Superbowl Weekend
I don't really do football. Unless one of my kids plays football someday, it's likely that I'll never do football. Even so, I still took some photos of the kids over the weekend and yes, I incorporated a football! It's Superbowl weekend after all... gotta get in the spirit... can someone tell me who's playing again?
Matthew wouldn't sit still long enough to get a photo with the football, so here he is being his silly little self! Just love him!
Matthew wouldn't sit still long enough to get a photo with the football, so here he is being his silly little self! Just love him!
26 January 2014
The sweetest thing
Cuddling with a sleeping baby Luke in the recliner while Matthew drags out every child size eating utensil and multiple cookie cutters to facilitate his homemade play dough obsession. Love watching Matthew play while Luke rests his head on my shoulder where I can rest my cheek on his cheek and we can snuggle close on this snowy day. Ahh, there isn't much sweeter in life than these moments with my little ones!!
25 January 2014
So many milestones, so little time
We've had so many awesome things happening at our house lately!
Luke
Luke has been army crawling for quite some time and continues to get faster and stronger. He's now able to nearly push up into a sitting position on his own and has been able to get out of sitting for probably at least a month. He has also been pulling to kneeling on the bottom step of the stairs for a few weeks and just today pulled to standing while I was sitting in our recliner. He pulled to kneeling by holding onto the recliner and kept trying to get higher so I held his hand to help stabilize him and he pulled the rest of the way to stand! He did this four times in just an hour! Tonight Dustin shared that he saw him kneeling on top of the first step so that's his first success with climbing too! A week ago yesterday at 12 months, 3 weeks Luke said his first word, ball! He was playing with a soccer ball with his speech therapist and she was referring to the "ball" and he just started repeating it! It's such an exciting time to observe Luke, he is just amazing!
Matthew
Luke isn't the only amazing little one in our family, Matthew is pretty spectacular too! He is repeating everything and has a vocabulary to rival some of the best communicators his age. It's normal for him to speak in 5-7 word sentences and it's really fun to talk to someone who can carry on a conversation and has such a high level of understanding and comprehension. This week we've reached a major milestone in that we are seriously working on potty training. The sitter started it with him on Monday and as of today (Saturday) we've only had a few accidents. He's really not been telling us that's ready to go, rather we have to remind him about once an hour, but that's pretty irrelevant to me since it seems to be working. I'm sure it won't be long before he's directing us by sharing his needs. He's been wearing big boy undies all week which is beyond adorable and we've been offering him chocolate chips as a treat after he goes.... He's sure to remind us after each successful trip to the bathroom that he's ready for "more chocolate chips"!
30 December 2013
I wish I could be a child again...
I'm sorry I haven't written much lately. I do have plans to get back online and update on our lives again soon! As I write, both boys are napping in their cribs and I've just taken a break from a new book I'm reading, "The Year My Son And I Were Born: A Story of Down Syndrome, Motherhood and Self Discovery" by Kathryn Soper. There was a line that struck me and I needed to write... so here I am.
"I watched them go, wishing I could be a child again, instead of a mother."
Soper was referencing how she felt as her 6 oldest children left the hospital after meeting their new baby brother, Thomas, who was diagnosed with Down syndrome at birth the day prior. This struck me because I recall feeling the exact same way, wishing someone could take the reigns and live my life for me and I could in turn be reduced to the innocent days of Kool-Aid and cartoons. I wanted to run away from my life and my own reality. I didn't want to deal with the hardships that everyone told me were in store for my future. I felt that way for a long time too during the last half of my pregnancy, when we knew that Luke would be born with DS. It's quite amazing the extremes that I've felt through this experience... the lows have been so very deep and dark and almost nonhuman and the highs have been completely the opposite... I've had an uncountable number of moments when I've felt like I was soaring high above the clouds, in on a secret that was greater than the greatest secret imaginable, like I'd found heaven on earth. I don't know how else to explain it. It confuses me actually, how I could have been so terrified of our impending life with Luke, especially now that I am certain of the love and joy he's brought to my life. Why has our society created that? The divide is too deep and too wide. All life is precious... why did I question the gift that God had planned for my life? I have so many questions in retrospect on why I felt so destitute at the time. I feel guilty for the thoughts that I had back then.
Yesterday, Dustin's Grandpa Taylor told me that he was proud of Dustin and I because "we wanted this child". He told me how proud he was of Matthew and Luke because they were both beautiful and strong in their own ways. In all of his elderly, Grandfather-ly wisdom, he was right. They are beautiful and strong and we have so much to be proud of. It meant a lot to me that he said those words, in his generation, individuals with Down syndrome hardly existed... at least not in the throws of society. They were thought so much less of that they were institutionalized. They didn't have contact with their families... essentially, they were let go and forgotten. I've never asked he or Dustin's grandma (or any of our grandparents for that matter) if they ever knew someone with DS so I'm not sure if any of them ever had personal experiences. Regardless, knowing that this population wasn't readily accepted by their generation has always left me quietly wondering how they felt about Luke being a part of our family. While I probably shouldn't have ever questioned this either... it's not hard for doubts to find their way in through the teeniest cracks and it just felt good to know that he is accepted fully for all that he is by those close to us.
While I'm sure there will be days ahead for me that I will revert to wishing I was a child again, for now I feel so blessed for the role I play to two of the sweetest and most loving little boys in the entire world. I couldn't imagine my life today if I weren't a mother!
"I watched them go, wishing I could be a child again, instead of a mother."
Soper was referencing how she felt as her 6 oldest children left the hospital after meeting their new baby brother, Thomas, who was diagnosed with Down syndrome at birth the day prior. This struck me because I recall feeling the exact same way, wishing someone could take the reigns and live my life for me and I could in turn be reduced to the innocent days of Kool-Aid and cartoons. I wanted to run away from my life and my own reality. I didn't want to deal with the hardships that everyone told me were in store for my future. I felt that way for a long time too during the last half of my pregnancy, when we knew that Luke would be born with DS. It's quite amazing the extremes that I've felt through this experience... the lows have been so very deep and dark and almost nonhuman and the highs have been completely the opposite... I've had an uncountable number of moments when I've felt like I was soaring high above the clouds, in on a secret that was greater than the greatest secret imaginable, like I'd found heaven on earth. I don't know how else to explain it. It confuses me actually, how I could have been so terrified of our impending life with Luke, especially now that I am certain of the love and joy he's brought to my life. Why has our society created that? The divide is too deep and too wide. All life is precious... why did I question the gift that God had planned for my life? I have so many questions in retrospect on why I felt so destitute at the time. I feel guilty for the thoughts that I had back then.
Yesterday, Dustin's Grandpa Taylor told me that he was proud of Dustin and I because "we wanted this child". He told me how proud he was of Matthew and Luke because they were both beautiful and strong in their own ways. In all of his elderly, Grandfather-ly wisdom, he was right. They are beautiful and strong and we have so much to be proud of. It meant a lot to me that he said those words, in his generation, individuals with Down syndrome hardly existed... at least not in the throws of society. They were thought so much less of that they were institutionalized. They didn't have contact with their families... essentially, they were let go and forgotten. I've never asked he or Dustin's grandma (or any of our grandparents for that matter) if they ever knew someone with DS so I'm not sure if any of them ever had personal experiences. Regardless, knowing that this population wasn't readily accepted by their generation has always left me quietly wondering how they felt about Luke being a part of our family. While I probably shouldn't have ever questioned this either... it's not hard for doubts to find their way in through the teeniest cracks and it just felt good to know that he is accepted fully for all that he is by those close to us.
While I'm sure there will be days ahead for me that I will revert to wishing I was a child again, for now I feel so blessed for the role I play to two of the sweetest and most loving little boys in the entire world. I couldn't imagine my life today if I weren't a mother!
07 December 2013
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